Taylor

Monday, September 7, 2009

Taylor is having surgery because his scoliosis is getting worse. They will be attaching metal rods to each side of his spine and connect them to his pelvic bone. The surgery is Oct 5th at Primary Children's. The surgery will take about 8 hrs. and he will be in the hospital for 10 days. Approximate recovery time at home is 2 months.

5 comments:

Noah And Kai said...: We will keep praying for Taylor and all of you. You are so strong Misty. Love you guys!; September 8, 2009 at 7:44 AM
MJ said...: We want you to know that we are here for you. Please let us know if we can help in any way. We love your kids!! You are an amazing mom.

The Johnsons; September 8, 2009 at 9:54 AM
Allyson said...: Wow! What a big trial to overcome. How old is Taylor? I hope that the surgery will be successful one. Hang in there. I'm sure this is very stressful situation for you and your family. Think positive! Our thoughts and prayers go out to you!; September 8, 2009 at 2:10 PM
*~The Last Family: Nick Felicia and Rylee~* said...: we will pray for u all and i will b there on the 5th thats when brindon gets his cast of so i will find you and com say hi wish you the best and love you all.; September 16, 2009 at 11:34 AM
Misty said...: Thank you for all your thoughts and prayers.; September 16, 2009 at 12:14 PM

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Taylor has Duchenne muscular dystrophy (DMD) it's a severe recessive X-linked form of muscular dystrophy characterized by rapid progression of muscle degeneration, eventually leading to loss of ambulation and death. This affliction affects one in 3500 males, making it the most prevalent of muscular dystrophies. In general, only males are afflicted, though females can be carriers. The disorder is caused by a mutation in the gene DMD, located in humans on the X chromosome (Xp21). The DMD gene codes for the protein dystrophin, an important structural component within muscle tissue. Dystrophin provides structural stability to the dystroglycan complex (DGC), located on the cell membrane. Symptoms usually appear in male children before age 6 and may be visible in early infancy. Progressive proximal muscle weakness of the legs and pelvis associated with a loss of muscle mass is observed first. Eventually this weakness spreads to the arms, neck, and other areas. Early signs may include pseudohypertrophy (enlargement of calf muscles), low endurance, and difficulties in standing unaided or inability to ascend staircases. As the condition progresses, muscle tissue experiences wasting and is eventually replaced by fat and fibrotic tissue (fibrosis). By age 10, braces may be required to aid in walking but most patients are wheelchair dependent by age 12. Later symptoms may include abnormal bone development that lead to skeletal deformities, including curvature of the spine. Due to progressive deterioration of muscle, loss of movement occurs eventually leading to paralysis. Intellectual impairment may or may not be present but if present, does not progressively worsen as the child ages. The average life expectancy for patients afflicted with DMD varies from early teens to age mid 30s. There have been reports of DMD patients surviving past the age of 40 and even 50.

Taylor

Monday, September 7, 2009

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